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Living with brAVERY

The journey to "find" my daughter

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December 14, 2017December 14, 2017 livingwithbravery

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Our Battle

Born with a rare, genetic growth disorder called Russell-Silver Syndrome, Avery will always be small and will deal with the various challenges this condition brings. Our bigger fight is her newest diagnosis: Chronic colonic pseudo-obstruction. It is a life-long, most often progressive disorder of the GI tract that causes, most notably in Averys case, intense abdominal distention and pain. Currently there is no cure and very few options to help with the symptoms of the condition.

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Recent Posts

Surgeries, seizures, and strokes…seriously, I wish this was a joke! September 21, 2018
Collateral Damage May 18, 2018
Acceptance December 15, 2017
The Spot on the Carpet October 20, 2017
No Time To Cry September 28, 2017

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