**I wanted to share this very detailed story about Avery's most recent journey so that people can fully appreciate the struggle to find a diagnosis and to understand that when you are dealing with a rare disorder it can take years to find answers and the medical trauma these kids are subjected to while in… Continue reading Waiting for our ‘miracle from heaven’

We are so fortunate to have so many friends and family who have supported and followed us through all of Avery's health issues. With all the recent medical interventions she has had lately and with big decisions coming up I thought it was time to have a place that I can dedicate to keeping you… Continue reading From the beginning