Skip to content

Living with brAVERY

The journey to "find" my daughter

Home
About
Contact

20170604_104553

July 20, 2017 livingwithbravery

Published by livingwithbravery

View all posts by livingwithbravery

Post navigation

Previous Post 20170604_104553

Leave a comment Cancel reply

Δ

Twitter
Facebook
Google+
GitHub
WordPress.com

Our Battle

Born with a rare, genetic growth disorder called Russell-Silver Syndrome, Avery will always be small and will deal with the various challenges this condition brings. Our bigger fight is her newest diagnosis: Chronic colonic pseudo-obstruction. It is a life-long, most often progressive disorder of the GI tract that causes, most notably in Averys case, intense abdominal distention and pain. Currently there is no cure and very few options to help with the symptoms of the condition.

Search for:

Recent Posts

Surgeries, seizures, and strokes…seriously, I wish this was a joke! September 21, 2018
Collateral Damage May 18, 2018
Acceptance December 15, 2017
The Spot on the Carpet October 20, 2017
No Time To Cry September 28, 2017

Website Built with WordPress.com.

Comment
Subscribe Subscribed
- Living with brAVERY
- Already have a WordPress.com account? Log in now.